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Renal Patient Forum
Meetings at UHCW
Keep up to date with the latest renal news...
Next Meeting:
10th March 2020 @ 18.30
5th floor seminar room UHCW 

Greater patient / patient carer participation is needed, ideally covering all the units and PD and transplantation. This forum is a 2-way process to identify areas that need improvement and to build on areas that are working well. We are fortunate at this trust to have such an environment to be listened to and without support we may lose it. 
Please come along to our next meeting - you will be most welcome.

Renal Patient Forum
July 2019 PDF
Mar 2019 PDF
Nov 2018 PDF
July 2018 PDF
March 2018 PDF
Jan 2018 PDF
Sept 2017 PDF
Jun 2017 PDF
March 2017 PDF
Jan 2017 PDF
Sept 2016 PDF
June 2016 PDF
March 2016 PDF
Dec 2015 PDF
Sept 2015 PDF
June 2015 PDF
March 2015 PDF


In Touch Magazine
November issue!

Posted: 2nd December 2019

On Monday 11th November 2019, the National Kidney Federation (NKF) created a completely new role of Liaison Officer. This role will evolve over time, but initially is a role with the aim to help and directly assist the many Kidney Patient Associations around the United Kingdom.

We are please to hear that Mark Davis has been appointed the new NKF Liaison Officer, and we wish him all the very best in his new role. Mark was very supportive of our KPA in his previous role of West Midlands Advocacy Officer for the NKF & BKPA .

Read the article in November's NKF 'In Touch' Magazine to find out more about Mark's new role.

Download PDF

Help make local NHS services better
Share your Views!

Posted: 5th January 2019

NHS plan

The NHS has produced a plan, setting out all of the things it wants health services to do better for people across the country. Now your local NHS needs to hear from you about what those changes should look like in your community:

* How would you help people live healthier lives?

* How would you make it easier for people to take control of their own health and wellbeing?

* What would you do to make support better for people with long-term health conditions?

Share your views through the Healthwatch surveys:

What would you do to give people more control of their care?

What would you do to give people better support?

Please follow the link to the Healthwatch surveys:


Please fill out your survey before the end of April 2019.

Research and Development
Get involved!

Posted: 5th January 2019

Research poster

Would you like to shape research at UHCW?

The Research & Development Team at University Hospital Coventry and Warwickshire (UHCW) are looking for patients, carers and members of the public to join the Patient and Public Research Advisory Group.

Research is an essential part of healthcare development as it allows us to develop new treatments and find out which is the best available treatment or care for patients. Research can also help us understand how to diagnose or prevent disease. UHCW is very active in research, with over 4000 people taking part in a wide range of research studies each year. It is important that patients, carers and the wider public have an opportunity to give their opinion on the research that happens at UHCW. By joining the Patient and Public Research Advisory Group you can use your personal experiences and perspectives to guide and influence research at UHCW.

Some of the ways the group do this include:

• Working with researchers to develop study proposals by giving a patient/public perspective
• Reviewing study documents aimed at patients to ensure that they are appropriate
• Giving a patient/public perspective throughout a study by sitting on a study steering group
• Suggesting a research topic that they think is important

If you would like to join the Patient and Public Research Advisory Group or would like more information please contact: Tracy Gazeley, PPIE Lead
Telephone – 02476 966201
E-mail – tracy.gazeley@uhcw.nhs.uk

Organ Donation Opt-Out System Consultation
Let the Government know your views

Posted: 18th January 2018

The government plans to change the organ and tissue donation system to an 'opt-out' system.
Act now - Make your views known.
The consultation closes at 11.59pm on 6 March 2018



Kidney Research
Patients wanted

Posted: 25th March 2017

kidney research poster


British Kidney Patient's Association
Annual Impact Report

Posted: 18th January 2017

Improving support, services and quality of life for kidney patients. View the latest annual impact report:
















Patient Reported Experience Measure (PREM)
Pilot Questionnaire

Posted: 13th July 2016

UHCW renal services, and in particular Dr Dan Ford and Dr Kate McCarthy, have been working with the Renal Registry and NHS England to pilot the introduction of patient centred questionnaires, to identify individuals’ levels of engagement with their care, their outcome measures and their experience measures.

During the last week of June (27th June - 1st July) we asked any renal patient accessing the service to complete an anonymous Patient Reported Experience Measure (PREM). This includes all renal replacement therapy and out-patient attendees.

Find out more about this National Programme 'Transforming Participation in Chronic Kidney Disease (CKD)' here:



Home Therapies Regional Meeting
Wednesday 14th October

Posted: 19th Sept 2015



Trust Logo





Venue: The Regency Hotel, Stratford Road, Solihull, West Midlands

09:00 – 09:20 Registration & Coffee

09:20 – 09:30 Welcome and Aims of the Day

09:30 – 09:50 Setting up a Home Therapies Team –Dr J Baharani and Sister S Powers HEFT

09.50 – 10:10 Home installation – When do we say No (TBC)

10:10 – 10:30 Vascular access Planning- Mr Wilmink, Consultant Vascular Surgeon HEFT

10:30 – 10:45 Questions and Discussion

10:45 – 11:00   Coffee

11:00 – 12:30 The Portsmouth Experience

Running a Home Haemodialysis Service

Dr Natalie Borman

Immediate Start Peritoneal Dialysis

Sister Gerry Endell and Collagues   

12:30 – 13:45 Lunch and Exhibition

13:45 – 15:00 Patient Experience – chaired by Mr  Mark Davis NKF

Pre-Dialysis to Peritoneal Dialysis

Mr John Cleaver

Home Haemodialysis for ever?

Ms Maddy Warren

Patient/Carer/Staff perspective on home therapy for dialysis

Ms Adele Taylor

15:00 – 15:15   Coffee

15:15 – 16:15 Mega MDT Dr Hugh Rayner and Mr Roger Adkins

16:15 – 16:30 Summing Up, Evaluation and Close

Online Survey

Posted: May 21st, 2015

Actions Following Adverse Clinical Incidents in Transplantation – Online Survey

Can you help us please? The University Hospitals Coventry & Warwickshire, U.K, in collaboration with Warwick Medical School, University of Warwick, U.K. is conducting a web based questionnaire study looking at actions taken following clinical adverse incidents in transplantation, in different hospitals. We would appreciate your participation in this survey, which should take about 10 minutes.

The web link for the study, with details included, is http://www2.warwick.ac.uk/fac/sci/eng/staff/jgh/afacit

Many thanks for considering participation in this study.


Dialysis Commissioning Update

Posted: February 5th, 2015

NKF and APPKG WIN commissioning Victory - at least for one year Breaking News The following announcement shows that the NKF campaign together with KPA's, patients and other stakeholders has reversed the Governments harmful plans to alter the way Dialysis Services are commissioned in the UK.  The NKF wants to both thank and congratulate all renal patients and KPA's who played an active part in this campaign.  Well done - together we turned back the almost overwhelming  tide !

NHS England will continue to commission specialist renal and morbid obesity services in 2015-16 after concerns were raised by organisations including NHS Clinical Commissioners who said patients could be put at risk if the services were transferred this April. It said it will keep under review whether to transfer responsibility to clinical commissioning groups, but any changes would not happen before April 2016. Director of commissioning specialised services Richard Jeavons said: “We all want what is best for patients, and we have listened extremely carefully to their views and those of CCGs. For the time being we will continue to directly commission these services, which will give us head room to work through the proposals in more detail and address the issues that have been raised with us.” NHS England has launched a consultation into how it will prioritise which specialised services and treatments to invest in. It directly commissions around 145 specialised services. It is now going to decide which of these it will continue to fund. The consultation will last for 90 days. The NHS England board voted to extend the length of the consultation at their last board meeting in December. Mr Jeavons said: “We want to ensure patients have access to the very best innovative, evidence-based treatments and services that are being developed all the time. We need to get the most out of every pound for the benefit of patients. They asked us to consult on the principles and process behind making these decisions, which is exactly what we are doing.” This process is looking at the specialist treatments and services that will be routinely available for groups of patients on the NHS. Clinicians, on behalf of their patients, will continue to be able to make a request (an Individual Funding Request) to NHS England for treatment that is not routinely available. NHS England is also seeking views on which specialised services should be prioritised for ‘service reviews’ as part of a rolling programme of reviewing how each specialised service is delivered. NHS England is writing to all providers of specialised services, Clinical Reference Groups and associated patient groups seeking their views on where to concentrate efforts over next 12 – 24 months.

Timothy F Statham OBE Chief Executive NKF Secretariat to the All Party Parliamentary Kidney Group


Important: Dialysis Commissioning Changes Intentions

Posted: January 11th, 2015

Dialysis Commissioning NHS England Commissioning intentions were published on 3rd October 2014. There is a plan to stop commissioning dialysis as a "specialised service" and devolve commissioning responsibility for dialysis to Clinical Commissioning Groups. The National Kidney Federation (NKF) has always been against this idea and has been promised full consultation. If you have an interest in dialysis, you may wish to read the consultation document and feed your view back to the NKF. You can read the commissioning document here:
You can feed your views back to:
Timothy F Statham OBE (NKF CEO)
Remember: it is your service and such major changes matter. You can look at the NKF website for the latest news:


Latest News - Coventry City Centre Dialysis Unit

Posted: January 11th, 2015

There is still a delay with the provision of a city centre dialysis unit for Coventry. Although there is a consensus of agreement with the Commissioning groups, the main problem is the requirement of a new business proposal requested by NHS Estates. To comply with this request takes a lot of time and effort, and will have to be based on current costings.
In the meantime various options are been explored to relieve the pressure on services, including extra twilight spaces. The knock-on effect on staff and transport provision is been assessed, as well as trying to get support from other local health authorities by them taking back patients who live in their areas.
Reminder: Patient Questionnaire In the coming months a patient questionnaire is to be issued. All renal patients are encouraged to complete this as accurately as possible as the results will be assessed and used to shape the provision of future renal services.


NKF Conference - some of the highlights by Mike Horton

Posted: January 11th, 2015

 This year's Conference was entitled "Taking Control"
 Subjects included the more technical side of transplantation, by Mr Mark Clancy , Consultant Transplant surgeon from Glasgow, along with the personal experiences of four patients on their journeys through the renal experience.
 One of the highlights of the Conference was the cookery demonstration given by Laurence Keogh, the TV Chef, himself a renal patient. He gave a very funny, informative demonstration as he reminisced on his experiences of renal failure, and how it affected his career - as he cooked a three course meal – in one hour!
 The hot topic of the Conference was the discussion on Patient Transport. It was obvious that problems exist throughout the country. Delegates put forward their moans and groans with graphic examples of early or late transport. No panacea for the perfect system could be suggested. A group of delegates were tasked to look at
the situation and come up with some guidelines. (Coventry & Warwickshire KPA will be participating.)
 The Chairman of the NKF, Mr Kirit Modi, announced that he would be standing down at the AGM in March 2015, as his transplanted kidney is failing.
 As you are all aware the Government was trying to reduce the Renal Budget by 15% in the coming year. Kirit Modi announced that he welcomed the decision of Monitor and NHS England, not to go ahead with the severe cuts from 2015/16. This process would be "paused" for one year. This "pause" will allow greater engagement and assessment of the pricing, and impact on services in particular. Further engagement with clinical expertise, KPAs, the NKF and other interested parties over the 2016/17 prices will take place. Kirit thanked everyone who had helped bring about this "pause".


The Firebird Singers Fundraiser

Posted: August 4th, 2014

Spirit of the Song

I was lucky enough to attend this great concert with Vivienne at Blue Coat Church of England School and Music College, Coventry. We were entertained with uplifting songs by an extremely talented choir led by Musical Director Andrew Smith. Thanks for a wonderful evening and in doing so raising funds for our KPA.

To hear The Firebird Singers in Concert at Christmas and for details of future events please visit their website: http://www.firebirdsingers.org.uk/


Abbie's Skydive Fundraiser

Update:August 4th, 2014

Abbie has safely completed her skydive and in doing so has exceeded her fundraising target of £750. Abbie has raised a whopping £811.00 so far.

Well done Abbie and a great big Thank You from us all!

Posted: February 1, 2014

"On 18th April, I am doing a skydive to raise money for the Coventry and Warwickshire Kidney Patients’ Association.

The CWKPA is a charity very close to my heart; the CWKPA supported my dad from the first time he went into renal failure 20 years ago, through his transplant and continues to support him as he goes into renal failure again." Abbie Bird

"Thank you so much Abbie for fundraising for us and good luck with your skydive. I do hope you enjoy it." Ed.

If you would like to find out more or wish to sponsor Abbie, please visit her Just Giving page: http://www.justgiving.com/Abbie-Bird


Charity Art Exhibition

Posted: December 5, 2013

UK Artists and AMA joined together in November for the first time to organise the charity art exhibition at All Saints Church, Leamington Spa as part of their annual Arts Festival.
The exhibition was very well received and we were pleased to have sold eleven pieces of art and all of the handmade postcards, bar one. Fiona Williams, from the All Saints Arts Festival committee, sends her thanks:

“ This is a very belated ‘thank you’ for you, the Warwickshire Artists and the Midland Artists for mounting such a lovely exhibition in All Saints.  It was quite humbling to see the range of talent displayed in the church aisles and wonderful to have the opportunity to enjoy the works on show.  We are so grateful to you for providing such an important part of our modest Arts Festival weekend – it was great to have so many more people come into church and know that they were going to enjoy such a high quality exhibition. The café reaped the benefits too!” 

The exhibition was opened at a private view by National Kidney Federation Advocacy Officer Mark Davis who gave an enlightening speech highlighting the work of the Coventry & Warwickshire Kidney Patients Association & NKF and the facts and his thoughts about organ donation.
The Coventry & Warwickshire Kidney Patients Association, Myton Hospices and All Saint’s Church were the three charities to benefit from the profits.

Home Haemodialysis

Posted: October 5, 2013

Home Dialysis1 - Home Dialysis2 - Home Dialysis3