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In Touch Magazine
On Monday 11th November 2019, the National Kidney Federation (NKF) created a completely new role of Liaison Officer. This role will evolve over time, but initially is a role with the aim to help and directly assist the many Kidney Patient Associations around the United Kingdom.
We are please to hear that Mark Davis has been appointed the new NKF Liaison Officer, and we wish him all the very best in his new role. Mark was very supportive of our KPA in his previous role of West Midlands Advocacy Officer for the NKF & BKPA .
Read the article in November's NKF 'In Touch' Magazine to find out more about Mark's new role.
Help make local NHS services better
The NHS has produced a plan, setting out all of the things it wants health services to do better for people across the country. Now your local NHS needs to hear from you about what those changes should look like in your community:
* How would you help people live healthier lives?
* How would you make it easier for people to take control of their own health and wellbeing?
* What would you do to make support better for people with long-term health conditions?
Share your views through the Healthwatch surveys:
What would you do to give people more control of their care?
What would you do to give people better support?
Please follow the link to the Healthwatch surveys:
Please fill out your survey before the end of April 2019.
Research and Development
Would you like to shape research at UHCW?
The Research & Development Team at University Hospital Coventry and Warwickshire (UHCW) are looking for patients, carers and members of the public to join the Patient and Public Research Advisory Group.
Research is an essential part of healthcare development as it allows us to develop new treatments and find out which is the best available treatment or care for patients. Research can also help us understand how to diagnose or prevent disease. UHCW is very active in research, with over 4000 people taking part in a wide range of research studies each year. It is important that patients, carers and the wider public have an opportunity to give their opinion on the research that happens at UHCW. By joining the Patient and Public Research Advisory Group you can use your personal experiences and perspectives to guide and influence research at UHCW.
Some of the ways the group do this include:
• Working with researchers to develop study proposals by giving a patient/public perspective
If you would like to join the Patient and Public Research Advisory Group or would like more information please contact:
Tracy Gazeley, PPIE Lead
Organ Donation Opt-Out System Consultation
The government plans to change the organ and tissue donation system to an 'opt-out' system.
British Kidney Patient's Association
Improving support, services and quality of life for kidney patients. View the latest annual impact report:
Patient Reported Experience Measure (PREM)
UHCW renal services, and in particular Dr Dan Ford and Dr Kate McCarthy, have been working with the Renal Registry and NHS England to pilot the introduction of patient centred questionnaires, to identify individuals’ levels of engagement with their care, their outcome measures and their experience measures.
During the last week of June (27th June - 1st July) we asked any renal patient accessing the service to complete an anonymous Patient Reported Experience Measure (PREM). This includes all renal replacement therapy and out-patient attendees.
Find out more about this National Programme 'Transforming Participation in Chronic Kidney Disease (CKD)' here:
Home Therapies Regional Meeting
09:00 – 09:20 Registration & Coffee
09:20 – 09:30 Welcome and Aims of the Day
09:30 – 09:50 Setting up a Home Therapies Team –Dr J Baharani and Sister S Powers HEFT
09.50 – 10:10 Home installation – When do we say No (TBC)
10:10 – 10:30 Vascular access Planning- Mr Wilmink, Consultant Vascular Surgeon HEFT
10:30 – 10:45 Questions and Discussion
10:45 – 11:00 Coffee
11:00 – 12:30 The Portsmouth Experience
Running a Home Haemodialysis Service
Dr Natalie Borman
Immediate Start Peritoneal Dialysis
Sister Gerry Endell and Collagues
12:30 – 13:45 Lunch and Exhibition
13:45 – 15:00 Patient Experience – chaired by Mr Mark Davis NKF
Pre-Dialysis to Peritoneal Dialysis
Mr John Cleaver
Home Haemodialysis for ever?
Ms Maddy Warren
Patient/Carer/Staff perspective on home therapy for dialysis
Ms Adele Taylor
15:00 – 15:15 Coffee
15:15 – 16:15 Mega MDT Dr Hugh Rayner and Mr Roger Adkins
Posted: May 21st, 2015
Actions Following Adverse Clinical Incidents in Transplantation – Online Survey
Can you help us please? The University Hospitals Coventry & Warwickshire, U.K, in collaboration with Warwick Medical School, University of Warwick, U.K. is conducting a web based questionnaire study looking at actions taken following clinical adverse incidents in transplantation, in different hospitals. We would appreciate your participation in this survey, which should take about 10 minutes.
The web link for the study, with details included, is http://www2.warwick.ac.uk/fac/sci/eng/staff/jgh/afacit
Many thanks for considering participation in this study.
Dialysis Commissioning Update
Posted: February 5th, 2015
NHS England will continue to commission specialist renal and morbid obesity services in 2015-16 after concerns were raised by organisations including NHS Clinical Commissioners who said patients could be put at risk if the services were transferred this April. It said it will keep under review whether to transfer responsibility to clinical commissioning groups, but any changes would not happen before April 2016. Director of commissioning specialised services Richard Jeavons said: “We all want what is best for patients, and we have listened extremely carefully to their views and those of CCGs. For the time being we will continue to directly commission these services, which will give us head room to work through the proposals in more detail and address the issues that have been raised with us.” NHS England has launched a consultation into how it will prioritise which specialised services and treatments to invest in. It directly commissions around 145 specialised services. It is now going to decide which of these it will continue to fund. The consultation will last for 90 days. The NHS England board voted to extend the length of the consultation at their last board meeting in December. Mr Jeavons said: “We want to ensure patients have access to the very best innovative, evidence-based treatments and services that are being developed all the time. We need to get the most out of every pound for the benefit of patients. They asked us to consult on the principles and process behind making these decisions, which is exactly what we are doing.” This process is looking at the specialist treatments and services that will be routinely available for groups of patients on the NHS. Clinicians, on behalf of their patients, will continue to be able to make a request (an Individual Funding Request) to NHS England for treatment that is not routinely available. NHS England is also seeking views on which specialised services should be prioritised for ‘service reviews’ as part of a rolling programme of reviewing how each specialised service is delivered. NHS England is writing to all providers of specialised services, Clinical Reference Groups and associated patient groups seeking their views on where to concentrate efforts over next 12 – 24 months.
Timothy F Statham OBE Chief Executive NKF Secretariat to the All Party Parliamentary Kidney Group
Important: Dialysis Commissioning Changes Intentions
Posted: January 11th, 2015
Latest News - Coventry City Centre Dialysis Unit
Posted: January 11th, 2015
There is still a delay with the provision of a city centre dialysis unit for Coventry. Although there is a consensus of agreement with the Commissioning groups, the main problem is the requirement of a new business proposal requested by NHS Estates. To comply with this request takes a lot of time and effort, and will have to be based on current costings.
Posted: January 11th, 2015
The Firebird Singers Fundraiser
Posted: August 4th, 2014
Spirit of the Song
I was lucky enough to attend this great concert with Vivienne at Blue Coat Church of England School and Music College, Coventry. We were entertained with uplifting songs by an extremely talented choir led by Musical Director Andrew Smith. Thanks for a wonderful evening and in doing so raising funds for our KPA.
To hear The Firebird Singers in Concert at Christmas and for details of future events please visit their website: http://www.firebirdsingers.org.uk/
Abbie's Skydive Fundraiser
Update:August 4th, 2014
Abbie has safely completed her skydive and in doing so has exceeded her fundraising target of £750. Abbie has raised a whopping £811.00 so far.
Well done Abbie and a great big Thank You from us all!
Posted: February 1, 2014
"On 18th April, I am doing a skydive to raise money for the Coventry and Warwickshire Kidney Patients’ Association.
The CWKPA is a charity very close to my heart; the CWKPA supported my dad from the first time he went into renal failure 20 years ago, through his transplant and continues to support him as he goes into renal failure again." Abbie Bird
"Thank you so much Abbie for fundraising for us and good luck with your skydive. I do hope you enjoy it." Ed.
If you would like to find out more or wish to sponsor Abbie, please visit her Just Giving page: http://www.justgiving.com/Abbie-Bird
Charity Art Exhibition
Posted: December 5, 2013
UK Artists and AMA joined together in November for the first time to organise the charity art exhibition at All Saints Church, Leamington Spa as part of their annual Arts Festival.
“ This is a very belated ‘thank you’ for you, the Warwickshire Artists and the Midland Artists for mounting such a lovely exhibition in All Saints. It was quite humbling to see the range of talent displayed in the church aisles and wonderful to have the opportunity to enjoy the works on show. We are so grateful to you for providing such an important part of our modest Arts Festival weekend – it was great to have so many more people come into church and know that they were going to enjoy such a high quality exhibition. The café reaped the benefits too!”
The exhibition was opened at a private view by National Kidney Federation Advocacy Officer Mark Davis who gave an enlightening speech highlighting the work of the Coventry & Warwickshire Kidney Patients Association & NKF and the facts and his thoughts about organ donation.
Posted: October 5, 2013